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    Last Updated: 10/30/2025

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    MediFind found 12 doctor with experience in Dysferlinopathy near Kansas City, KS. Of these, 10 are Experienced, 1 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    12 providers found
      Distinguished in Dysferlinopathy
      Distinguished in Dysferlinopathy

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
       (4.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeffrey Statland is a Neurologist in Kansas City, Kansas. Dr. Statland is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Paramyotonia Congenita, Primary Lateral Sclerosis, and Gastrostomy. Dr. Statland is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
       (4.0 miles away)
      Languages Spoken:
      English, French, Greek, Spanish
      Accepting New Patients
      Offers Telehealth

      Constantine Farmakidis is a Neurologist in Kansas City, Kansas. Dr. Farmakidis is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Paramyotonia Congenita, Tomaculous Neuropathy, Septic Arthritis, and Thymectomy. Dr. Farmakidis is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Dysferlinopathy
      Physiatry | Pediatrics
      Experienced in Dysferlinopathy
      Physiatry | Pediatrics
      2401 Gillham Rd, 
      Kansas City, MO 
       (3.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Diana Marchese is a Physiatrist and a Pediatrics provider in Kansas City, Missouri. Dr. Marchese is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Neurogenic Bowel, Acute Flaccid Myelitis (AFM), Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency, and Duchenne Muscular Dystrophy. Dr. Marchese is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Ability Kc

      3011 Baltimore Ave, 
      Kansas City, MO 
       (3.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mark Fisher is a Physiatrist in Kansas City, Missouri. Dr. Fisher is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Primary Lateral Sclerosis, Spasticity, Spastic Diplegia Infantile Type, and Cerebral Palsy. Dr. Fisher is currently accepting new patients.

      Experienced in Dysferlinopathy
      Neurology | Hospital Medicine
      Experienced in Dysferlinopathy
      Neurology | Hospital Medicine

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
       (4.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Long Davalos-Loo is a Neurologist and a Hospital Medicine provider in Kansas City, Kansas. Dr. Davalos-Loo is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Miller-Fisher Syndrome, Chronic Polyradiculoneuritis, Guillain-Barre Syndrome, and Myasthenia Gravis. Dr. Davalos-Loo is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      3901 Rainbow Blvd, 4070 Delp Mail Stop 4017, 
      Kansas City, KS 
       (4.0 miles away)
      Languages Spoken:
      English

      April Mcvey is a Neurologist in Kansas City, Kansas. Dr. Mcvey is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Inclusion Body Myositis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, and Primary Lateral Sclerosis.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
       (4.2 miles away)
      Languages Spoken:
      English, Arabic, French
      Offers Telehealth

      Mazen Dimachkie is a Neurologist in Kansas City, Kansas. Dr. Dimachkie is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myositis, Inclusion Body Myositis, Myasthenia Gravis, Pompe Disease, and Thymectomy.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Shawnee Mission Medical Center Inc

      9100 W 74th St, Ahmg Cardiology At Shawnee, 
      Merriam, KS 
       (9.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jill Spangler is a primary care provider, practicing in Family Medicine in Merriam, Kansas. Dr. Spangler is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Epilepsy, Idiopathic Edema, Memory Loss, and Maturity Onset Diabetes of the Young. Dr. Spangler is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Shawnee Mission Medical Center Inc

      9301 W 74th St, 100 Ahmg Hematology Oncolo, 
      Merriam, KS 
       (9.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Royce Dunn is a primary care provider, practicing in Internal Medicine in Merriam, Kansas. Dr. Dunn is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Hypothyroidism, Pulmonary Embolism, Alzheimer's Disease, and Obesity in Children. Dr. Dunn is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Legacy Healthcare Services Inc

      5901 W 107th St, 
      Overland Park, KS 
       (12.7 miles away)
      Experience:
      43+ years
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Geha is a primary care provider, practicing in Internal Medicine in Overland Park, Kansas. Dr. Geha has been practicing medicine for over 43 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Necrosis, Lung Metastases, Pneumonia, Endoscopy, and Colonoscopy. Dr. Geha is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Select Physical Therapy Holdings Inc

      2301 S Missouri 291 Hwy, Select Physical Therapy, 
      Independence, MO 
       (13.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Leland Scott is a Neurologist in Independence, Missouri. Dr. Scott is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Polymyositis, Lambert-Eaton Syndrome, and Stiff Person Syndrome. Dr. Scott is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Johnson County Neurology LLC

      12140 Nall Ave, Suite 230, 
      Leawood, KS 
       (14.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      David Clark is a Neurologist in Leawood, Kansas. Dr. Clark is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Trigeminal Neuralgia, Cramp-Fasciculation Syndrome, Primary Orthostatic Tremor, and Lambert-Eaton Syndrome. Dr. Clark is currently accepting new patients.

      Showing 1-12 of 12

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor near Kansas City, KS?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor near Kansas City, KS?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors near Kansas City, KS?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors near Kansas City, KS?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor near Kansas City, KS?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor near Kansas City, KS?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors near Kansas City, KS?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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